Monday, July 28, 2014

Video du Jour: What Is Alzheimer's Disease?

This is my greatest fear, explained.  I'd also been concerned about the possibility of brain damage due to Lupus (something that's a real threat for many Lupies)... because to me, there is nothing more horrific than extreme mental capacity loss.  

While I respect and applaud my son for living with schizophrenia and my daughter with autism, seeing it from the outside, seeing their struggles, makes me acutely aware of the possibility, as I age, of loss of connection with reality or severe mood changes.  And I know I don't want to live that way.

It's not something I obsess over.  I don't spend my day worrying about dementia, but it's something that sits at the back of my brain, rearing it's head every now and then when I read another story, or see another tv report about an elderly person going missing during his/her morning walk
... and every time I hear this song:

The song is based on the true story of Lela and Raymond Howard, Lela suffered from Alzheimer's and Raymond was still recovering from brain surgery, who left for a local festival (15 miles away)  in their car... and did not return. They were found dead some time later in Arkansas (350 miles from home),  still in their car, which had driven off the road into dense brush.

Sunday, July 27, 2014

Blue Boat Home

We sang this song at church today (yes, I go to Unitarian Universalist services).  It's my favorite, and I hope, that when my time comes, it'll be sung at my memorial.  It brings me to tears almost every time I hear it.

Words by singer/songwriter Peter Mayer

Though below me, I feel no motion
Standing on these mountains and plains
Far away from the rolling ocean
Still my dry land heart can say
I've been sailing all my life now
Never harbor or port have I known
The wide universe is the ocean I travel
And the earth is my blue boat home

Sun, my sail, and moon my rudder
As I ply the starry sea
Leaning over the edge in wonder
Casting questions into the deep
Drifting here with my ship's companions
All we kindred pilgrim souls
Making our way by the lights of the heavens
In our beautiful blue boat home

I give thanks to the waves upholding me
Hail the great winds urging me on
Greet the infinite sea before me
Sing the sky my sailor's song
I was born upon the fathoms
Never harbor or port have I known
The wide universe is the ocean I travel
And the earth is my blue boat home

Happy Anniversary, Ellen and Carlos!

7 years and going strong!